Easter Tips

Here is Day 4 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us!

Finally, plan ahead. You know your child better than anyone, so anticipate trouble spots before they happen. Pack a busy bag for church, seat your child far away from a well-meaning relative who’ll try and force unfamiliar foods on him, or pair your kiddo up with an understanding cousin who’ll help her navigate the kids’ table. Then relax and enjoy making memories with your family!

Keep up to date by following our Instagram account @rett_syndrome_bc

Easter Tips

Here is Day 3 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us!

Go candy-free. Children with special needs often have some sort of food restriction. Eliminate the issue by filling your Easter eggs with toys instead. Consider fidget toys, bubbles, Silly Putty, pencil grips, novelty erasers, toy cars, ear buds, balls, money, and Lego figurines. If you’re giving a treat to a child on a special diet, be sure to run any food items by mom and dad first to make sure it’s not on the restricted list.

Keep up to date by following our Instagram account @rett_syndrome_bc

Easter Tips

Here is Day 2 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us!

Adapt your Easter Egg hunt. No one is less happy than a kid with an empty basket at the end of an Easter egg hunt. While it may be tempting to hover nearby and help your child find his eggs, there are ways to adapt your hunt so he can be successful on his own. The first step is to lay out the rules: Everyone stops after finding X number of eggs, which gives slower children more time to look for their eggs without fear of them all being found. Or try assigning each child their own colour to find. Talking eggs give an additional auditory clue and are also great for kids with visual impairments. One of my favourite home visit activities this time of year is an egg hunt inside a sensory bin (usually rice). Because it’s one-on-one, each child has as much time as they want to find their eggs and it’s an activity that is easily adapted to each child’s needs.

Keep up to date by following our Instagram account @rett_syndrome_bc

Easter Tips

Here is Day 1 of our Easter Survival Tips! We would like to remind you that every child is different and unique and responds to stimuli in different ways. Here is what worked for us!

Put down that Easter bonnet. The adorable smocking on that fancy Easter dress or the stiff dress shirt and tie might feel a little itchy to a typical child, but to a child with sensory issues who over-registers sensations, it could very well be unbearable. You might be able to compromise by letting her wear a favourite t-shirt underneath or letting him wear his Superman socks. But if not, you might just have to let it go. If you just can’t bear to let her wear her beloved sweatpants today, at least pick out an outfit that’s soft and comfortable. Make it special by choosing holiday colours or adding holiday accessories.

Keep up to date by following our Instagram account @rett_syndrome_bc

Virtual Family Social

Join us for our virtual family social on Wednesday at noon!

Date and Time: Wednesday, March 24, 2021 at 12:00 pm

Location: Zoom

Zoom Link: Contact info@rettbc.ca for the link and more information

If you have any questions or concerns, please contact info@rettbc.ca also.

Keep up to date with family socials like this one and what we’re up to by following our Instagram account @rett_syndrome_bc

Hope to see you there!

-The RSSBC Team

Welcome to our new website!

Christinea Walker

I would like to take a minute and say thank you for visiting our website. Learning about Rett Syndrome can feel daunting regardless of the reasons you are doing so. However, know that you are not alone. We at R.S.S.B.C. are here to support you whether you have a relative with Rett Syndrome, are a friend supporting a family with a child with Rett Syndrome,  are seeking volunteer opportunities or you simply just want to learn about it. 

Whatever the reason we thank you for taking the time to learn more about Rett Syndrome. This disorder is complex and changes lives but we have seen some amazing resilience grown from it. Not just in the children affected by it but rather their entire communities, including parents, siblings, relatives, friends, teachers, therapists and so many more. Each child is unique and special just like all of us. Their journeys may look different and take a few extra twists and turns but all any parent wants is for their child to be loved and included within their own communities. If you are reading this website and letter, you are part of that community for someone very special regardless of whether you know them yet or not. 

Our website was built to allow anyone to access information about Rett Syndrome, our society and resources that families can take advantage of. If after looking on our website you still have questions we encourage anyone to contact us. We would be happy to speak to anyone interested in Rett Syndrome.

Christinea Walker
President

AGM 2021

Rett Syndrome Society of BC- AGM

Date and Time: Sunday May 2nd, 2021 at 7:30 pm

Location/Platform: Zoom

Zoom Link and Itinerary TBA

The Rett Syndrome Society of BC is proud to present our Annual General Meeting! All active members and any interested members of the public should and are encouraged to attend. This is a chance to have your voice heard, get up to date information of all the work that the Rett Syndrome Society of British Columbia have been up to and vote in new or returning board members. 
All members will receive a zoom link by email closer to the date. If you do not receive the email, would like to get involved, or have any questions please email the RSSBC team at info@rettbc.ca

Hope to you see you there!

-The RSSBC Team