iPad Raffle!

It’s finally here! Our annual fundraiser is up and running, however, this year it looks a bit different!
This year you can purchase your tickets online! No more need for paper booklets, collecting change, and mailing checks. Simply follow the link, purchase your tickets and share this post with all your family and friends! This fundraiser offsets all or most of our operating costs all year so we need to make it a huge success, please share this link as much as possible and good luck to everyone that enters.

https://rettbc.rafflenexus.com/

AGM Reminder and Itinerary

AGM 

May 2nd @ 7:30pm via Zoom 

Please join us for our annual general meeting. All members need to attend this ONE meeting on an annual basis to ensure we can continue to support families. This is your time to ask questions and have your voice heard. So far all those on the board would like to carry on their titles and duties. However, if you would like to put your name/skillset forward we would be extremely grateful and welcoming. The Value of One, The Power of Many. Please contact info@rettbc.ca for the Zoom link!

Note: This AGM is for mostly incumbent members and families of RSSBC. If you have any questions contact info@rettbc.ca also.

Here is the itinerary so you know what will be happening!

RSSBC AGM 2021 Itinerary

  1. Approval of Minutes
  2. Approval of Agenda
  3. President’s Report by Christinea Walker (year in review, goals for the future)
  4. Vice President’s Report by Leigh Anne Stitt
  5. Treasurer’s Report by Katheryn Shantora
  6. Fundraising Coordinator Updates by Christine Little
  7. Voting of Board Members
  8. New Business
  9. Next Meetings

Hope to see you there!

-The RSSBC Team

National Volunteer Week- Vivian Hou

UBC student, Vivian Hou, reached out to RSSBC in June of 2020 to offer her amazing drawing/sketching skills. Vivian spent months creating a new tool for children to understand why their peers are both similar yet different. This amazing tool was built into a coloring book that can be used in both school or community engagement settings. To view Vivians amazing work, please click on the link below to download. Thank you Vivian for your amazing talent and dedication. 

National Volunteer Week- Arlena Musinga Kamuzima

smiling ethnic woman showing volunteer sign on red apron

UBC student Arlena approached RSSBC in 2020 just after the pandemic hit. She has been building RSSBC’s newsletter designs and sending them to all our members and supporters on a regular basis. She has found new programs to make this not only easier for the society but also more appealing for those to read and continue to stay informed. With Arlena’s help, we have been able to send out a newsletter each quarter meaning families and supporters are gathering up-to-date information about what is happening with the society and ways they can get involved. Thank you Arlena for taking the time out of your busy schedule to support RSSBC!

National Volunteer Week- Kathryn Shantora

Kathryn Shantora is the co-founder of RSSBC. She helped build the community well before RSSBC was established in 2013. She hosted/supported multiple meetings and connected with many families giving them a place to feel safe while talking about daily challenges. Kathryn’s busy schedule meant she was not able to take on a large role with RSSBC but she has always been a supporter, attending every meeting, every fundraiser and offered emotional support to all those that she met. In 2019 RSSBC was elated to hear that she was able to take on a larger role. We know we are in great hands having Katheryn as treasurer of the society.
Thank you for being such great support for all.

National Volunteer Week- Christine Little

Christine is a veterinarian by trade and has been a huge asset to our organization. She comes with a medical background and is able to put medical terminology to plain language. Christine works tirelessly on creating snapshot reports on research papers all while finding ways that RSSBC can raise funds to ensure our programs are secured. As a fundraising coordinator Christine has learned a lot this past year and a half and we hope to continue to work with her in the future.
Thank you for all your time and efforts Christine.

National Volunteer Week- Karl Lam

crop person touch palms with newborn baby on gray backdrop

Karl, a web designer and father to a child with Rett Syndrome connected with RSSBC after his child was diagnosed. He offered up his skill set to help develop a new website, promoting not only the society but to help get resources and information to families and supporters in a timely and efficient manner. Karl spent a year creating and building the new Rett Syndrome BC website. He continues blessing RSSBC with his skill set and meets regularly with the team to ensure the website continues to run effectively and has current information. Thank you so much for all you do Karl! We are forever grateful.

National Volunteer Week- Alice Wang

Alice has been volunteering with RSSBC since the summer of 2020. She was instrumental in our Rett Syndrome awareness campaign in October. She tirelessly contacted every mayor/city in which a person with Rett Syndrome lived in BC, asking for a light-up event and/or proclamation. It was because of her efforts that we had 10 locations light up around BC and received 15 proclamations. She also wrote feature stories about those with Rett Syndrome that were posted to our social media outlets in October which was seen by over four and half thousand people. Alice’s self-driven personality has been a huge assist and we look forward to continuing to work with her. 

National Volunteer Week- Leigh Anne Stitt

Entrepreneur, Leigh Anne Stitt has been volunteering with RSSBC for two years. She reached out to RSSBC after her niece was diagnosed. She wanted to help not only her niece and family but others like them. Leigh Anne accepted the Vice President position and has been a huge assist to the society. Leigh Anne brings a large company business background that has benefited the society time and time again.
Thank you, we are forever indebted to you, Leigh Anne.